Centralised versus outreach models of cystic fibrosis care should be tailored to the needs of the individual patient

Centralised versus outreach models of cystic fibrosis care should be tailored to the needs of the individual patient Journal Article

Internal Medicine Journal

• Author(s): Geake, James, Ballard, Emma, O'Rourke, Peter, Wainwright, Claire E., Reid, David W., Bell, Scott C.
• Published: 2020
• Publisher: John Wiley & Sons, Ltd
• Volume: 50
• ISBN: 1444-0903

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Abstract: Cystic fibrosis (CF) is a common life-limiting genetic condition. As the disease progresses access to specialist tertiary multi-disciplinary care services may become necessary. For patients living in regional/remote Australia, accessing such services may be a challenge. Here, we describe long-term outcomes for CF patients according to their access to specialist CF centre care in childhood.

• Urls: https://doi.org/10.1111/imj.14724
• Keywords: cystic fibrosis, tertiary healthcare, lung function, mortality, lung transplantation, rural