The development and implementation of a culturally safe survey for measuring knowledge, attitudes and values around FASD and for measuring knowledge, attitudes and values around FASD and alcohol use during pregnancy in a remote Australian Aboriginal community setting
The development and implementation of a culturally safe survey for measuring knowledge, attitudes and values around FASD and for measuring knowledge, attitudes and values around FASD and alcohol use during pregnancy in a remote Australian Aboriginal community setting
Australian Indigenous HealthBulletin
- Author(s): Symons, Martyn, Tucker, David, Bruce, Kaashifah, Stearne, Annalee
- Published: 2021
- Volume: 2
Abstract: Fetal Alcohol Spectrum Disorder (FASD) is characterised by a range of lifelong disabilities caused by alcohol exposure during pregnancy (Mattson, Crocker, & Nguyen, 2011; Streissguth, Barr, Kogan, & Bookstein, 1996). Worldwide the estimated prevalence of FASD is 22.77 (0–176.77) cases per 1000 live births (Roozen et al., 2016). The average additional yearly cost associated with being born with FASD in four western countries has been estimated at USD $20,000 per year (Greenmyer, Klug, Kambeitz, Popova, & Burd, 2018). Furthermore, without appropriate support the social and emotional difficulties faced by children born with FASD and their families can seriously impact the whole family and community (Jonsson, 2019). While there are therapeutic approaches aimed at reducing the impact of FASD on children and families, these are difficult and costly to implement with variable efficacy (Reid et al., 2015). FASD is however preventable, and preventative measures are likely to yield the most positive outcomes for affected communities.