Researching with Remote Aboriginal Communities of Australia – A Community Perspective
Researching with Remote Aboriginal Communities of Australia – A Community Perspective
Journal of Paediatrics and Child Health
- Author(s): Fitzpatrick, EFM, McDonald, G, Martiniuk, A, Oscar, J, D'Antoine, H, Carter, M, Lawford, T, Elliott, E
- Published: 2018
- Publisher: John Wiley & Sons, Ltd
- Volume: 54
- ISBN: 1034-4810
Abstract: Introduction: Indigenous populations are amongst the most marginalised worldwide, which affects their health and well-being. Well-intentioned researchers from non-Indigenous backgrounds often approach communities to conduct research with the intent to help improve health opportunities and outcomes, however there are few publications reflecting on or evaluating the consent process for research with Indigenous communities (1). If community engagement and consent-seeking is not done in a culturally respectful, empowering way, it may do the community a disservice. Recruitment rates may be affected, results may be biased, and the research will be unlikely to achieve the intended positive, long lasting benefits for the community. Methods: The Picture Talk Project was invited by Aboriginal leaders of the Fitzroy Valley in the Kimberley, Australia. Non-Aboriginal researchers worked in collaboration with local Aboriginal leaders to evaluate the preference and understanding of the consent process for research, discuss past experiences, and make recommendations for the future. Local Aboriginal Community Navigators interpreted language and culture throughout the research process. Leaders were interviewed and Aboriginal community members participated in focus groups. Transcripts were analysed through NVivo10 qualitative software using grounded theory through inductive and deductive coding and themes are synthesised with supportive quotes highlighted. A detailed description of The Picture Talk Project research protocol has been published (2). Findings from interviews with community leaders have been reported (3). Results from the focus groups and final conclusions are now reported. Results: A total of 6 focus groups were formed, each comprising 3 to 8 participants. Participants were from all 4 main major language groups of the Fitzroy Valley, male and female, and from a variety of age groups, educational backgrounds social standing, and communities (with variable remoteness from Fitzroy Crossing). The six key themes identified for research in Aboriginal communities were: Reputation and trust is essential; The Community Navigator is Key; Pictures give words meaning (Milli milli vs Pictures); Consensus is achieved in circles through sharing stories; Signing consent; Research is needed in the Valley. We will present practical advice about how to conduct respectful research in remote Aboriginal communities. Conclusion: Culturally appropriate research is needed in Aboriginal communities and must be guided by Aboriginal people to enable researchers to navigate through another world view of knowledge.